Research trials we are currently recruiting to and other research
Research opportunities can be discovered via the CTAP Trials Tracker. Here are a few of the studies we are recruiting to:
The MoreLife with CF Health Care Professionals Weight Management Experience Study
Do you work with adults living with CF?
Are you a registered dietitian, physiotherapist, clinical nurse specialist, doctor or psychologist ?
We would like to invite you to take part in an online focus group to discuss your experience of managing adults with CF who are living with overweight or obesity and are on CFTR modulator therapy.
Your experiences and views will inform the design of a CF specific weight management programme
How do you take part?
Download a participant information leaflet here
Complete our online screening questionnaire and consent form here
Once you completed the consent form, you will be contacted to arranage a date to take part in a focus group interview
For more information email - Jo Barrett Specialist CF Dietitian, NIHR Doctoral Fellow jbb902@student.bham.ac.uk
The MoreLife with CF Study - Find out more about our research programme that aims to co-design with people living with CF, a diet physical activity programme for people with CF on CFTR modulator therapy.
YOGA-CF
This study aims to investigate the effects of a 12-week online yoga programme for adults with cystic fibrosis (CF) compared to your usual CF care. The study will assess effects on health-related quality of life, alongside assessing effects on pain, aspects of mental health, lung function and physical function.
Grampus-CF
A study to explore 'cluster' of gut symptoms in CF to see if they have common causes. You can take part via the Trialmotif app, find out more here.
If you are interested in participating in either of these studies or have any questions about clinical research, please get in touch with our CTAP coordinator or speak to a member of the CF Team
Patient and Public Involvement Opportunities
MoreLife with CF Lead Partners
Jane and Carly are Lead Partners for the More Life with CF Research Study
As lead partners, Jane and Carly have lived experience of cystic fibrosis. They are working closely with the lead researcher (Jo Barrett) in planning and co-ordinating all patient and public involvement activities for this research study. This includes planning our patient advisory group meetings, CF community involvement, and leading our patient advisory group. The More Life with CF Patient Advisory Group make shared decisions with the research team and provide feedback on how the research is carried out and communicated to the CF community.
Read about Jane and Carly's journey living with cystic fibrosis and why they decided to become More Life with CF Lead Partners
If you have cystic fibrosis or care for someone who has cystic fibrosis and would like to join our patient advisory group, please email Joanne.barrett2@nhs.net for more information.